First Call Program
For expectant and new parents of children with Down syndrome, any opportunity to speak with other parents who have experienced what you are experiencing can be invaluable. The DSA of Greater Charlotte’s Parent First Call program is a volunteer group of trained parent mentors available 24/7 to listen, share, answer questions, and provide valuable information. If you would like to speak with a First Call parent, complete the form below or call DSA-GC Program and Community Outreach Director, Victoria Coles, at 704-536-2163 or e-mail contactus@dsa-gc.org.
The Global Down Syndrome Foundation and the National Down Syndrome Congress have teamed up to publish the 2nd edition of the groundbreaking Prenatal Testing Pamphlet for Down syndrome.
“There is plenty of information out there about Down syndrome but a lot of it is not accurate, balanced, or up-to-date, and this can be scary and overwhelming to new parents. The information found in “Diagnosis to Delivery” and downsyndromepregnancy.org is empowering, helping new parents see that their new baby with Down syndrome will have all the same wonderful qualities and possibilities as any new baby, so that the arrival of this new life is the celebration it was meant to be. ” – Cam Brasington, MS, CGC, Genetic Counselor
“Understanding a Down Syndrome Diagnosis”
“Understanding a Down Syndrome Diagnosis” contains medical and developmental information about people with Down syndrome as well as local and national resources, pregnancy options and helpful visuals and graphics. This booklet has been reviewed by all the major medical organizations involved in expectant mothers’ health.
Online Resources
- Visit our national affiliate, the National Down Syndrome Congress (NDSC), for a wealth of information for expectant parents.
- Prenatal Screening and Testing for Chromosome Conditions
- Understanding Down Syndrome
- DownSyndromePregnancy.org
- Books about Down Syndrome (Downloadable)
- Down Syndrome Materials in Spanish
